Adult Cystic Fibrosis
At MaineHealth, our specialists work with a multi-disciplinary team to offer the most up-to-date services for diagnosing and treating cystic fibrosis. We have an adult and pediatric CF Center at Maine Medical Center in Portland. We are part of the Therapeutic Development Network so we are able to provide on site access to multi-center research studies through the CF Foundation toward a cure.
Genetic screening is offered to all families detected by screening to have CF or to be a CF carrier.
Many pregnant mothers are screened for CF genes but it is still recommended that their babies have CF newborn screening.
Our experienced CF team consists of a nurse practitioner, two social workers one of whom is funded by the CF Foundation to work exclusively on the mental health of our patients and families. We also have a nurse coordinator, nutritionist, respiratory therapist, pharmacist, research coordinator and physical therapist all of whom attend the National CF Conference annually to keep up to date. . We have two board certified adult pulmonologists.
Our goal is to provide CF patients and families with the most advanced care and access to research studies.
What is cystic fibrosis?
Cystic fibrosis, or CF, is an inherited disease passed down in families. Both parents have to carry the gene and carriers are asymptomatic. There is no cure for cystic fibrosis but through the work of the CF Foundation new therapies are being developed for this disease.
People with CF can have serious breathing problems due to problems with the mucus in their lungs. They also have problems with the pancreas requiring that they take enzymes to digest their food. Other organs can be affected as well.