MaineHealth provides a complete range of care for screening, diagnosis, and treatment of children and adults with hemophilia and other types of congenital bleeding disorders. Our mission is to provide patients with the highest quality comprehensive care.
A multidisciplinary approach to bleeding disorder care
Our team works with physicians, dentists, surgeons and specialty care providers to ensure our patients have comprehensive care plans for any invasive procedures or surgeries. We help coordinate home factor infusions and outside nursing services when needed and provide these services ourselves when possible. We also partner with schools, day care centers, camps, and emergency rooms to provide education so that our patients can be safely treated and evaluated outside the home.
Conditions commonly treated
- Hemophilia A (Factor VIII deficiency)
- Hemophilia B (Factor IX deficiency)
- Von Willebrand Disease
- Platelet defects
- Excessive bleeding after surgery
- Other coagulation factor deficiencies (i.e. Factor II, Factor V, Factor VII, Factor X, Factor XI, Factor XII, Factor XIII, dysfibrinogenemia / hypofibrinogenemia)
- Personal history of bleeding tendencies
- Family history of bleeding diathesis
- Other coagulopathy
24/7 Emergency Contact
More about our services
Our team provides comprehensive annual visits for our patients and additional appointments on an as-needed basis. The annual visit is recommended for all patients and is required for those patients who receive medication. Our annual visit team includes experts from hematology, nursing, social work and physical therapy.
Our patients have the opportunity to participate in research and registry programs which gather anonymous information from people diagnosed with bleeding disorders from around the country. Research provides insight into better treatment modalities and medications that improve overall patient outcomes.
Our team works with specialty pharmacies to ensure that patients have the right medications at the right time. Our 340b factor program serves as an independent, non-profit, factor delivery service. This program offsets the high cost of providing staff and comprehensive services to our patients.
Our dedicated pharmacy team works with the clinical team to integrate cost-effective pharmacy services with each patient's medical care. We deliver factor products and supplies with an emphasis on personalized service. Each patient who participates in our 340b factor program is personally guided through the factor product ordering and insurance billing process.
Our team provides patients and community partners with the latest bleeding disorder management education.
Eligible patients are provided the following enhanced services as needed:
- Pediatric dental consultation
- On-call assistance available 24 hours a day, 7 days a week
- Additional items for special circumstances
Patients with bleeding and clotting disorders are primarily cared for by:
- A hematologist (a physician who specializes in blood disorders) and/or
- A nurse practitioner and certified nurses who have specialized education in the care of people with bleeding disorders
As part of the comprehensive care provided, patients may also consult with physical therapists, researchers and social workers who provide psycho-social assessments, counseling, and resource information.
