MaineHealth provides a complete range of care for screening, diagnosis, and treatment of children and adults with hemophilia and other types of congenital bleeding disorders. As the only hemophilia treatment center (HTC) in Maine, our mission is to provide patients with the comprehensive bleeding disorder care of the highest quality.
What is a hemophilia treatment center (HTC)?
Hemophilia treatment centers (HTCs) are specialized centers that bring together a team of doctors, nurses and other health professionals experienced in treating people with hemophilia and bleeding disorders. HTCs provide access to multidisciplinary health care professionals who provides comprehensive care that is individualized for each patient.
The medical team helps coordinate care and connect patients to a range of health care services, as needed. Social workers and behavioral health clinicians are also available to provide mental health support. Research has shown that comprehensive care provided through a federally recognized hemophilia treatment center helps bleeding disorder patients live longer, healthier lives with fewer health complications, better health outcomes, and fewer hospitalizations.
Services
- Evaluation and specialized testing for suspected bleeding disorders
- Diagnosis and individualized treatment plans for ongoing care
- Medication management
- Clinical nutrition, physical therapy and other services as needed
Conditions commonly treated
- Hemophilia A | Factor VIII (8) deficiency
- Hemophilia B | Factor IX (9) deficiency
- Von Willebrand Disease
- Platelet defects
- Other coagulation factor deficiencies (i.e. Factor II, Factor V, Factor VII, Factor X, Factor XI, Factor XIII, Factor 1/dysfibrinogenemia/hypofibrinogenemia/afibrinogenemia)
- Family history of bleeding disorder
What to expect at your Comprehensive Clinic visit:
A visit to the Comprehensive Clinic is an important part of managing your bleeding disorder. The appointment is a check-up with a team of specialists who will talk with you about your disorder to determine how to best support you. A comprehensive clinic visit occurs every 1 – 2 years with the entire team to evaluate the patient’s treatment plan and provide updated, individualized recommendations from each team member. These visits can take approximately 2 hours depending on your diagnosis and individual situation. Your provider may recommend laboratory testing after your visit.
People you might meet during your visit:
- Medical team: hematologist (MD), nurse practitioner (NP) and nurse (RN)
- Physical therapist
- Social worker (LCSW)
- Behavioral health clinician
- Genetic counselor
- Clinical dietitian
- School and career counselor
- Research coordinator
If a team member is not available, or you are unable to meet with them during your visit, follow-up with that individual can be arranged.
More about our services
Phone: 207-396-7683
Fax: 207-396-7684
Referrals: MaineHealth providers may refer through EPIC. Other providers may fax referrals to 207-396-7684.
MaineHealth Bleeding Disorders Scarborough patients have the option to participate in the MaineHealth 340B program. Created in 1992, section 340B of the Public Health Service Act helps health care providers that serve low-income and uninsured patients stretch scarce federal resources as far as possible, reaching more eligible patients and providing more comprehensive services. Our HTC team works with specialty pharmacies to ensure that bleeding disorder patients have the right medications at the right time.
Our patients have the opportunity to participate in research and registry programs which gather anonymous information from people diagnosed with bleeding disorders from around the country. Research provides insight into better treatment modalities and medications that improve overall patient outcomes.
